The Noonan Syndrome Foundation (NSF) is the leading 501(c)(3) non-‐profit, charitable Noonan syndrome (NS) organization. Our mission is to Support, Educate, and Advocate for those with Noonan syndrome.
This policy describes the Noonan Syndrome Foundation’s collection and use of users' personal information (e.g., information that identifies a specific person, such as full name, postal address, telephone number, email address, or credit or debit card number) where that information is not otherwise publicly available.) It also describes generally the Noonan Syndrome Foundation’s practices for handling other information (e.g. interests, demographics and site usage) collected from you, through us or from a third party to the extent such information is associated with a particular device, user or user account.
2. INFORMATION WE COLLECT
"Personal Information" is the information that identifies you as an individual, such as name, postal address, telephone number, email address and credit or debit card number.
Personal Information You Submit
We collect personal information when you submit it to us, including but not limited to when you submit a donation, register for or subscribe to certain events, products, or services, create a profile, participate in a sweepstakes or contest, take a survey, use an interactive feature, or participate in a forum.
Personal Information We Receive from Third Parties
We may receive personal information about you from third parties, including, for example, information about your transactions, purchase history, or relationships with various product and service providers, and your use of certain applications.
For example, if you access an online service through a third party connection or login, such as Facebook connect, that third party may pass certain information about your use of its service to us. This information could include, but is not limited to, the user ID associated with your account, any information you have permitted the third party to share with us, and any information you have made public in connection with that service.
"Other Information" is any information that does not reveal your specific identity, such as browser information; information collected through cookies and other technologies, demographic information, and aggregated information. We may combine Other Information with your personal information, and when we do, we treat the combined information as personal information.
Other Information You Submit
We collect other information when you submit it to us. It may include your age, gender, education, occupation, financial information, interests, photos, connections, and comments.
Other Information We Receive from Third Parties
We may receive other information about you from third parties, including but not limited to, demographic data, information about your interests, and information about your activities on other websites.
Other Information We Collect Automatically When You are Online
Personal data is collected when users provide personal information that is not publically available to the Noonan Syndrome Foundation, for example by registering through the site and donating funds. The personal information that you provide must be true, accurate and complete and all registration details (where applicable) must contain your real name, address and other requested details.
Aggregated information, such as information on traffic patterns within the site, is collected by the Noonan Syndrome Foundation through various methods: IP Addresses: We collect IP addresses through the site. An IP address is a number that is automatically assigned to your computer whenever you're surfing the web. Web servers, the computers that "serve up" web pages, automatically identify your computer by its IP address, and when you request a page from the Site, our servers log your IP address. The site does not link IP addresses to anything personally identifiable, so although your session will be logged, you will remain anonymous to us.
Children and Privacy
We will not knowingly market to or collect personally identifiable information from children under age 13.
3. HOW WE USE YOUR INFORMATION
We use the personal information we collect from and about you for the purposes set forth below. Please note that we may use and disclose other information for any purpose, except where we are required to do otherwise under applicable law. If we are required to treat other information as personal information under applicable law, then we may use and disclose it for all the purposes for which we use and disclose personal information.
To improve the quality of our services, we may combine the personal and other information we collect with information that you provide to us in connection with us. To provide and manage our relationship and/or services, we may use the Personal Information we collect from and about you to provide our products and services and features to you and to improve upon our services, including, without limitation: to process and fulfill your donation, to send you information about your relationship or transactions with us, to measure and improve those services and features, to personalize your experience; to allow you to comment on content, participate in online games, contests, promotions or rewards programs, to provide you with customer support, and to respond to inquiries.
To contact you, we may periodically send promotional materials or notifications related to our products and services and/or the products and services of third parties to the email or postal address you provided. To help make these promotional materials more relevant to you, we may use and combine any of the personal and other information we collect to assist us in sending you promotional materials. If you want to stop receiving promotional materials from us, please let us know by contacting us as firstname.lastname@example.org. We may also use your email address to respond to inquiries or requests you make to us.
4. HOW WE SHARE YOUR INFORMATION
Information Made Public Through Use of Our Services and User Privacy Settings
Certain features on our website or other online services give you an opportunity to interact with others and us. These may include forums, message boards, chats, and creating community profiles. When you use these features, you should be aware that any information you submit, including your name, location and email address, may be publicly available to anyone, including other users, search engines, advertisers, third party application developers, and anyone else with access to our online services. We are not responsible for any information you choose to submit and make public through these interactive features.
Our Disclosure of Information
To allow third-‐party service providers to assist us in providing and managing our services, we may make your personal and other information available to certain third-‐party service providers, such as contractors, agents or sponsors, who help us manage or provide our products and services by, for example: developing or supporting products and features; sending email messages on our behalf; processing payments; fulfilling orders; delivering subscriptions; auditing; processing data or statistics; and serving, customizing or delivering marketing or ads.
California Residents: If you do not want your Personal and Other Information shared with these third parties for marketing purposes, please let us know by contacting at email@example.com.
To protect the rights of the Noonan Syndrome Foundation and our users, there may be instances when the Noonan Syndrome Foundation may disclose your Personal and Other Information, including situations where we have a good faith belief that such disclosure is necessary in order to: (i) protect or defend the legal rights or property of the Noonan Syndrome Foundation or its affiliates, or their employees, agents and contractors (including enforcement of our agreements); (ii) protect the safety and security of users of our products and services or members of the public; (iii) protect against fraud or for risk management purposes; (iv) comply with the law or legal process, including laws outside your country of residence; or (v) to respond to requests from public and government authorities including public and government authorities outside your country of residence.
To complete a merger or sale of assets, if the Noonan Syndrome Foundation sells all or part of its business or makes a sale or transfer of its assets or is otherwise involved in a merger or transfer of all or a material part of its business, the Noonan
Syndrome Foundation may transfer your Personal and Other Information to the party or parties involved in the transaction as part of that transaction.
Means of Notice and Choice
The Noonan Syndrome Foundation uses reasonable administrative, technical, personnel and physical measures to safeguard personal information in its possession against loss, theft and unauthorized use, disclosure or modification. Unfortunately, no transmission of data over the Internet is guaranteed to be completely secure. It may be possible for hackers or other third parties not under the control of the Noonan Syndrome Foundation to intercept or access transmissions or private communications unlawfully. While we strive to protect your personal information, the Noonan Syndrome Foundation cannot ensure or warrant the security of any information you transmit to us. Any such transmission is done at your own risk.
7. HOW CORRECT OR UPDATE YOUR INFORMATION
You can access or modify your information and modify your preferences by contacting us at firstname.lastname@example.org
8. CONTACT US
Noonan Syndrome Foundation
306 Exchange Blvd #156
Bethlehem, Ga 30620
Information we collect and how we may use it
If you are a customer of Kindful, we collect certain information about you in order to provide you with our donor management system and/or online payment service (the “Service”). When you register for the Service we will request some personal information such as your name and email address, and information about your organization such as the name of your organization, Tax ID, mailing address, and tax designation. Furthermore, if you are opening a merchant account, Kindful may also obtain information about you from third party sources, including, without limitation, consumer reporting agencies. This information is used to contact you about the services on our Site for which you have expressed an interest. As part of the Service, we may also collect donor information on behalf of your organization. Except as may be expressly set forth herein, we will not use any donor information collected on your behalf for any purpose other than to provide the Service. Any tax or financial information we collect is used only to bill you for the Service. If you purchase the Service by credit card, this information will be transmitted to our credit card merchant account provider, and may be forwarded to your credit card provider. We do not store credit card information.
If you are a donor for a Kindful customer, we collect certain information from you in order to process your donation (“Donor Information”). Kindful will use Donor Information during the course of providing the Service to such Kindful customer. Kindful may also use Donor Information at an aggregate level for internal business analyses and fraud prevention. During the course of providing the Service to Kindful customers, Kindful may disclose Donor Information to banks, processors, card associations, and other financial institutions that are involved in the course of processing or screening the transaction applicable to the Donor Information.
We may use personal information for internal purposes to provide you with other products and services, or to contact you regarding administrative notices or communications relevant to you on this Site. In addition, we may use personal information to provide or improve products or services that you have requested.
We will only use access to read Gmail message bodies (including attachments), metadata, headers, and settings to display emails to authorized users of Kindful and will not transfer this Gmail data to others unless doing so is necessary to provide and improve these features, comply with applicable law, or as part of a merger, acquisition, or sale of assets.
We will not use this Gmail data for serving advertisements.
We will not allow humans to read this data unless we have your affirmative agreement for specific messages, doing so is necessary for security purposes such as investigating abuse, to comply with applicable law, or for our internal operations and even then only when the data have been aggregated and anonymized.
When we disclose your information
Kindful takes your privacy very seriously. The information we collect is used to provide the Service, and, in general, is not shared with or sold to other organizations for commercial purposes. However, there are times when it may be advantageous for Kindful to make certain personal information about you available to companies that Kindful has a strategic relationship with or that perform work for Kindful to provide products and services to you on our behalf. These companies may help us process information, deliver products or services to you, provide customer service, manage and enhance user data, assess your interest in our products and services, or conduct user research or satisfaction surveys. We may also disclose your personal information, if you have authorized us to act on your behalf to initiate the creation of a merchant account for the purpose of accepting donations by credit card.
At times we may be required by law or litigation to disclose your personal information. We may also disclose information about you if we determine that for national security, law enforcement, or other issues of public importance, disclosure is necessary.
In addition, Kindful may sell, transfer or otherwise share some or all of its assets in connection with a merger, acquisition, reorganization or sale of assets, or in the event of bankruptcy. In such an event, personal information may be one of the assets transferred.
How we protect your personal information
Kindful takes precautions to safeguard your personal information against loss, theft, and misuse, as well as unauthorized access, disclosure, alteration, and destruction. Please be aware, however, that despite our efforts, no security measures are perfect or impenetrable and no method of data transmission that can be guaranteed against any interception or other type of misuse.
You can help us by also taking precautions to protect your personal data when you are on the internet. Do not share your registration information with anyone, and make sure you use a secure web browser.
Accessing your information
This Site may contain web pages through which you can correct or update some of the personal information you have provided to us. Kindful will make a good faith effort to make requested changes and correct your data if it is inaccurate or delete the data if we are not required to retain it by law or for legitimate purposes.
Cookies and other technologies
To make this Site more useful to you, we automatically gather general statistical information about this Site and its visitors, such as IP addresses (and information tied to IP addresses, such as screen size, color depth, language, java enabling, flash version, page title, host name, referring source, and page path), browsers, pages viewed, number of visitors, services purchased, etc. In doing so, we do not reference you by name, email, mailing address, or any similar personal information. We use this data in the aggregate to learn about our visitors and to improve our ability to cater to their needs. We may use third party vendors to gather general statistical information about this Site and its visitors as well as to perform certain services on behalf of this Site, such as hosting this Site, designing or operating this Site’s features, or performing other administrative services. We may provide these companies with access to your personal information to carry out the services they are performing for you or for Kindful.
Your California Privacy Rights
If you are a California resident and request information about how to exercise your third party disclosure choices you must send a request to email@example.com.