NS Foundation Privacy Policy

Noonan Syndrome Foundation’s Privacy Policy

1. INTRODUCTION
The Noonan Syndrome Foundation (NSF) is the leading 501(c)(3) non-­‐profit, charitable Noonan syndrome (NS) organization. Our mission is to Support, Educate, and Advocate for those with Noonan syndrome.

This policy describes the Noonan Syndrome Foundation’s collection and use of users' personal information (e.g., information that identifies a specific person, such as full name, postal address, telephone number, email address, or credit or debit card number) where that information is not otherwise publicly available.) It also describes generally the Noonan Syndrome Foundation’s practices for handling other information (e.g. interests, demographics and site usage) collected from you, through us or from a third party to the extent such information is associated with a particular device, user or user account.

By using this site and/or the services, you agree to the terms and conditions of this privacy policy. If you do not agree to the terms and conditions of this privacy policy, do not use the site or the services.

2. INFORMATION WE COLLECT
Personal Information
"Personal Information" is the information that identifies you as an individual, such as name, postal address, telephone number, email address and credit or debit card number.

Personal Information You Submit
We collect personal information when you submit it to us, including but not limited to when you submit a donation, register for or subscribe to certain events, products, or services, create a profile, participate in a sweepstakes or contest, take a survey, use an interactive feature, or participate in a forum.

Personal Information We Receive from Third Parties
We may receive personal information about you from third parties, including, for example, information about your transactions, purchase history, or relationships with various product and service providers, and your use of certain applications.

For example, if you access an online service through a third party connection or login, such as Facebook connect, that third party may pass certain information about your use of its service to us. This information could include, but is not limited to, the user ID associated with your account, any information you have permitted the third party to share with us, and any information you have made public in connection with that service.

Other Information
"Other Information" is any information that does not reveal your specific identity, such as browser information; information collected through cookies and other technologies, demographic information, and aggregated information. We may combine Other Information with your personal information, and when we do, we treat the combined information as personal information.

Other Information You Submit
We collect other information when you submit it to us. It may include your age, gender, education, occupation, financial information, interests, photos, connections, and comments.

Other Information We Receive from Third Parties
We may receive other information about you from third parties, including but not limited to, demographic data, information about your interests, and information about your activities on other websites.

Other Information We Collect Automatically When You are Online
Personal data is collected when users provide personal information that is not publically available to the Noonan Syndrome Foundation, for example by registering through the site and donating funds. The personal information that you provide must be true, accurate and complete and all registration details (where applicable) must contain your real name, address and other requested details.

Aggregated information, such as information on traffic patterns within the site, is collected by the Noonan Syndrome Foundation through various methods: IP Addresses: We collect IP addresses through the site. An IP address is a number that is automatically assigned to your computer whenever you're surfing the web. Web servers, the computers that "serve up" web pages, automatically identify your computer by its IP address, and when you request a page from the Site, our servers log your IP address. The site does not link IP addresses to anything personally identifiable, so although your session will be logged, you will remain anonymous to us.

Use of Cookies
The Noonan Syndrome Foundation may use cookies and other tracking technologies (including browser cookies, pixels, beacons, and Adobe Flash technology including cookies), which are comprised of small bits of data that often include an anonymous unique identifier. A cookie is a small data file that most major web sites write to your hard drive for record keeping purposes when you visit them.

Cookies allow us to measure activity on the site and to improve your user experience, for example by remembering your passwords and viewing preferences. Cookies are used by the Noonan Syndrome Foundation to measure activity on the site and make improvements and updates based on which areas are popular and which are not. We will make available cookies, containing non-­‐personally identifiable information such as IP address and pages viewed, regarding your activity on the site to certain third party providers with whom we work, in order to show advertisements relating to this site that may be of interest to you. Most browsers are initially set to accept cookies. If you'd prefer, you can set yours to refuse cookies or to alert you when cookies are being sent. However, it is possible that some parts of the Site will not function properly if you do so.

Children and Privacy
We will not knowingly market to or collect personally identifiable information from children under age 13.

3. HOW WE USE YOUR INFORMATION
We use the personal information we collect from and about you for the purposes set forth below. Please note that we may use and disclose other information for any purpose, except where we are required to do otherwise under applicable law. If we are required to treat other information as personal information under applicable law, then we may use and disclose it for all the purposes for which we use and disclose personal information.

To improve the quality of our services, we may combine the personal and other information we collect with information that you provide to us in connection with us. To provide and manage our relationship and/or services, we may use the Personal Information we collect from and about you to provide our products and services and features to you and to improve upon our services, including, without limitation: to process and fulfill your donation, to send you information about your relationship or transactions with us, to measure and improve those services and features, to personalize your experience; to allow you to comment on content, participate in online games, contests, promotions or rewards programs, to provide you with customer support, and to respond to inquiries.

To contact you, we may periodically send promotional materials or notifications related to our products and services and/or the products and services of third parties to the email or postal address you provided. To help make these promotional materials more relevant to you, we may use and combine any of the personal and other information we collect to assist us in sending you promotional materials. If you want to stop receiving promotional materials from us, please let us know by contacting us as info@teamnoonan.org. We may also use your email address to respond to inquiries or requests you make to us.

4. HOW WE SHARE YOUR INFORMATION

Information Made Public Through Use of Our Services and User Privacy Settings
Certain features on our website or other online services give you an opportunity to interact with others and us. These may include forums, message boards, chats, and creating community profiles. When you use these features, you should be aware that any information you submit, including your name, location and email address, may be publicly available to anyone, including other users, search engines, advertisers, third party application developers, and anyone else with access to our online services. We are not responsible for any information you choose to submit and make public through these interactive features.

Our Disclosure of Information
To allow third-­‐party service providers to assist us in providing and managing our services, we may make your personal and other information available to certain third-­‐party service providers, such as contractors, agents or sponsors, who help us manage or provide our products and services by, for example: developing or supporting products and features; sending email messages on our behalf; processing payments; fulfilling orders; delivering subscriptions; auditing; processing data or statistics; and serving, customizing or delivering marketing or ads.

California Residents: If you do not want your Personal and Other Information shared with these third parties for marketing purposes, please let us know by contacting at info@teamnoonan.org.

To protect the rights of the Noonan Syndrome Foundation and our users, there may be instances when the Noonan Syndrome Foundation may disclose your Personal and Other Information, including situations where we have a good faith belief that such disclosure is necessary in order to: (i) protect or defend the legal rights or property of the Noonan Syndrome Foundation or its affiliates, or their employees, agents and contractors (including enforcement of our agreements); (ii) protect the safety and security of users of our products and services or members of the public; (iii) protect against fraud or for risk management purposes; (iv) comply with the law or legal process, including laws outside your country of residence; or (v) to respond to requests from public and government authorities including public and government authorities outside your country of residence.

To complete a merger or sale of assets, if the Noonan Syndrome Foundation sells all or part of its business or makes a sale or transfer of its assets or is otherwise involved in a merger or transfer of all or a material part of its business, the Noonan
Syndrome Foundation may transfer your Personal and Other Information to the party or parties involved in the transaction as part of that transaction.

5. NOTICE

Means of Notice and Choice
This privacy policy is the primary means by which we provide you with notice and choice about our collection and use of your personal information. If we ask for specific personal information that will be used in a manner different from what is described in this privacy policy, we will inform you at the time of collection.

Privacy Policy Changes
The Noonan Syndrome Foundation may modify this Privacy Policy as necessary.

Data Retention
We will retain your personal information for the period necessary to fulfill the purposes outlined in this privacy policy unless a longer retention period is required or allowed by law.

Linked Websites
Our online services may also be linked to sites operated by third parties, and may carry advertisements or offer content, functionality, games or applications developed and maintained by third parties. Some of these third party sites may be co-­‐branded with the Noonan Syndrome Foundation logo, even though they are not operated or maintained by us. The Noonan Syndrome Foundation is not responsible for the privacy practices of any such third parties, and once you leave our online services via a link, enable a third-­‐party service, or click an advertisement, you should check the applicable privacy policy of the third-­‐party site.

6. SECURITY

The Noonan Syndrome Foundation uses reasonable administrative, technical, personnel and physical measures to safeguard personal information in its possession against loss, theft and unauthorized use, disclosure or modification. Unfortunately, no transmission of data over the Internet is guaranteed to be completely secure. It may be possible for hackers or other third parties not under the control of the Noonan Syndrome Foundation to intercept or access transmissions or private communications unlawfully. While we strive to protect your personal information, the Noonan Syndrome Foundation cannot ensure or warrant the security of any information you transmit to us. Any such transmission is done at your own risk.

7. HOW CORRECT OR UPDATE YOUR INFORMATION

You can access or modify your information and modify your preferences by contacting us at info@teamnoonan.org

8. CONTACT US

If you have any further questions regarding this privacy policy or the use of your personal and other information under this privacy policy, you can contact us at info@teamnoonan.org or at the address below.

Noonan Syndrome Foundation
306 Exchange Blvd #156
Bethlehem, Ga 30620

TRAIL SOFTWARE, INC. PRIVACY POLICY

This Privacy Policy (this "Privacy Policy") describes Trail Software, Inc.'s ("Trail Software," "we," "us," or" "our") collection, use, and disclosure of personally identifiable information ("PII") that may be collected by Trail Software anytime you ("you" or "user") visit our website, [http://www.kindful.com] (this "Site").

BY SUBMITTING YOUR INFORMATION THROUGH THIS SITE, YOU CONSENT TO THIS PRIVACY POLICY AND TO TRAIL SOFTWARE'S COLLECTION, USE, AND DISCLOSURE OF YOUR PII ACCORDING TO THE TERMS OF THIS PRIVACY POLICY. THIS SITE IS A GENERAL AUDIENCE SITE AND DOES NOT KNOWINGLY COLLECT PII FROM CHILDREN UNDER 13 YEARS OF AGE. IF YOU ARE UNDER 13 YEARS OF AGE, YOU ARE NOT PERMITTED TO USE THIS SITE.

This Privacy Policy is applicable only to this Site and does not apply to any third party websites or to other companies or persons. This Site may contain links to, and media and other content from, other sites. Because of the dynamic media capabilities of this Site, it may not be clear to you which links are embedded in this Site and which are embedded in third-party media or content. Trail Software cannot and does not guarantee the privacy policies and practices of any third party. Trail Software does not control, operate, or endorse any information, products, or services of any third-party websites that may be reached through links from this Site. The use of any PII provided by you to such third party will be governed by that party's privacy policy. If you are unsure whether a website is controlled, affiliated, or managed by Trail Software, you should review the privacy policy at each linked website to determine how that site treats your PII.

TRAIL SOFTWARE MAY CHANGE THIS PRIVACY POLICY FROM TIME TO TIME. THE REVISED POLICY WILL BE POSTED ON THIS SITE. Your continued use of this Site after Trail Software posts a revised Privacy Policy signifies your acceptance of the revised Privacy Policy and your consent to Trail Software's collection, use, and disclosure of your PII according to the terms of the updated Privacy Policy. It is therefore important that you review this Privacy Policy regularly to ensure you are updated as to any changes. This Privacy Policy was last revised on January 13, 2012.

Information we collect and how we may use it

If you are a customer of Trail Software, we collect certain information about you in order to provide you with our donor management system and/or online payment service (the "Service"). When you register for the Service we will request some PII such as your name and email address, and information about your organization such as the name of your organization, Tax ID, mailing address, and tax designation. Furthermore, if you are opening a merchant account, Trail Software may also obtain information about you from third party sources, including, without limitation, consumer reporting agencies. This information is used to contact you about the services on our Site for which you have expressed an interest. As part of the Service, we may also collect donor information on behalf of your organization. Except as may be expressly set forth herein, we will not use any donor information collected on your behalf for any purpose other than to provide the Service. Any tax or financial information we collect is used only to bill you for the Service. If you purchase the Service by credit card, this information will be transmitted to our credit card merchant account provider, and may be forwarded to your credit card provider. We do not store credit card information.

If you are a donor for a Trail Software customer, we collect certain information from you in order to process your donation ("Donor Information"). Trail Software will use Donor Information during the course of providing the Service to such Trail Software customer. Trail Software may also use Donor Information at an aggregate level for internal business analyses and fraud prevention. During the course of providing the Service to Trail Software customers, Trail Software may disclose Donor Information to banks, processors, card associations, and other financial institutions that are involved in the course of processing or screening the transaction applicable to the Donor Information.

We may use PII for internal purposes, such as registering you as a user on this Site, marketing and promotion, to provide you with other products and services, or to contact you regarding administrative notices, offerings, or communications relevant to you on this Site. In addition, we may use PII to provide products or services that you have requested as well as for auditing, research, and analysis to improve Trail Software's products and services.

Trail Software and any third parties listed in this Privacy Policy with whom Trail Software may share your PII, may use your PII to send you promotional messages. If you would no longer like to receive such messages, announcements, or mailings, you may “opt-out” and unsubscribe by clicking on the “unsubscribe link” found at the bottom of Trail Software or such third party marketing emails or by contacting Trail Software at the following postal or e-mail address:

Kindful
2975 Sidco Drive
Nashville, TN 37204
888.854.0933
support@kindful.com

Please note that PII does not include "aggregate" information, which is data we collect about a group or category of users, from which individual identities or other personal information has been removed. This Privacy Policy in no way restricts or limits our collection, use, or our ability to sell such aggregate information.

When we disclose your information

Trail Software takes your privacy very seriously. The information we collect is used to provide the Service, and, in general, is not shared with or sold to other organizations for commercial purposes. However, there are times when it may be advantageous for Trail Software to make certain PII about you available to companies that Trail Software has a strategic relationship with or that perform work for Trail Software to provide products and services to you on our behalf. These companies may help us process information, deliver products or services to you, provide customer service, manage and enhance user data, assess your interest in our products and services, or conduct user research or satisfaction surveys. We may also disclose your PII, if you have authorized us to act on your behalf to initiate the creation of a merchant account for the purpose of accepting donations by credit card.

At times we may be required by law or litigation to disclose your PII. We may also disclose information about you if we determine that for national security, law enforcement, or other issues of public importance, disclosure is necessary.

In addition, Trail Software may sell, transfer or otherwise share some or all of its assets in connection with a merger, acquisition, reorganization or sale of assets, or in the event of bankruptcy. In such an event, PII may be one of the assets transferred.

How we protect your personal information

Trail Software takes precautions to safeguard your PII against loss, theft, and misuse, as well as unauthorized access, disclosure, alteration, and destruction. Please be aware, however, that despite our efforts, no security measures are perfect or impenetrable and no method of data transmission that can be guaranteed against any interception or other type of misuse.

You can help us by also taking precautions to protect your personal data when you are on the internet. Do not share your registration information with anyone, and make sure you use a secure web browser.

Accessing your information

This Site may contain web pages through which you can correct or update some of the PII you have provided to us. Trail Software will make a good faith effort to make requested changes and correct your data if it is inaccurate or delete the data if we are not required to retain it by law or for legitimate purposes.

Cookies and other technologies

To make this Site more useful to you, we automatically gather general statistical information about this Site and its visitors, such as IP addresses (and information tied to IP addresses, such as screen size, color depth, language, java enabling, flash version, page title, host name, referring source, and page path), browsers, pages viewed, number of visitors, services purchased, etc. In doing so, we do not reference you by name, email, mailing address, or any similar PII. We use this data in the aggregate to learn about our visitors and to improve our ability to cater to their needs. We may use third party vendors to gather general statistical information about this Site and its visitors as well as to perform certain services on behalf of this Site, such as hosting this Site, designing or operating this Site's features, or performing other administrative services. We may provide these companies with access to your PII to carry out the services they are performing for you or for Trail Software.

As part of our service, we also use cookies to store and sometimes track information about you. A “cookie” is a small amount of data that is sent to your browser from a web server and stored on your computer’s hard drive. Generally, we use cookies to remind us who you are, to give you easier access to repeatedly used account information, to gather statistical information about usage, to research visiting patterns, and to help target advertisements based on user interests. In some instances, our partners and advertisers appearing at this Site may use their own cookies. Your web browser settings, which you may change at any time, determine if and how a cookie will be accepted. By changing those settings, you can accept all cookies, be notified when a cookie is set, or simply reject all cookies. If you decide to reject all cookies, please be aware that you may be required to re-enter your information more often and certain features of this Site may be unavailable to you.

Your California Privacy Rights

Residents of the State of California, under a provision of the California Civil Code, have the right to request from companies conducting business in California a list of all third parties to which the company has disclosed PII during the preceding year for direct marketing purposes. Alternatively, the law provides that if the company has a privacy policy that gives either an Opt-out or Opt-in choice for use of your PII by third parties (such as advertisers) for marketing purposes, the company may instead provide you with information on how to exercise your disclosure choice options.

Trail Software qualifies for the alternative option; it has a comprehensive privacy policy and provides you with details on how you may either Opt-out or Opt-in to the use of your PII by third parties for direct marketing purposes. Therefore, we are not required to maintain or disclose a list of the third parties that received your PII for marketing purposes during the preceding year.

If you are a California resident and request information about how to exercise your third party disclosure choices you must send a request to support@kindful.com.